Du kan byta språk på enkäten i det övre högra hörnet. Om du inte hittar ett språk som du kan uttrycka dig på får du gärna delta i en intervju med tolk. Maila i sådana fall embarc@du.se

You can change the language of this questionnaire in the upper right corner. If you cannot find a language you can express yourself in, you are welcome to participate in an interview with an interpreter. In that case, please email embarc@du.se.

يمكنك تغيير لغة الاستبيان في اعلى الجهة اليمنى

إذا لم تجد اللغة المناسبة لك، يمكنك المشاركة في المقابلة مع مترجم . في هذه الحالة يرجى إرسال بريد إلكتروني الى

embarc@du.se

Luqada waad ka badali kartaa sahanka xagga sare ee dhinaca midigta ah. Haddii aadan heleyn luqada kale ee aad dareemahaaga ku cabiri karto, waad nala soo xiriiri kartaa si aan wareysi kula yeelano. Adigoo nagala soo xiriirayo embarc@du.se

Information for Study Participants

We want to ask if you would like to participate in a research project. This document provides information about the project and what it means to participate.

We only collect your survey responses. We do not save your IP address. All answers are anonymous and will not be reported individually. No unauthorized person can see your answers. 

What is the purpose of the project and why are you asked to take part?

Research from Sweden, the United Kingdom, and other countries shows that pregnant/new mothers and newborn babies who belong to racialised minoritised groups fare worse than those who belong to racialised majoritised groups.

Therefore, it is important to collect stories about perceived racism from maternal care to highlight - often subtle and unconscious - processes that lead to poorer care and health. The aim is to use these stories to improve care.

You are being asked to participate because you have experienced discrimination based on ethnicity, race, or skin color from maternal care. To participate, you need to be at least 18 years old, have been subjected to racism, or witnessed your partner being subjected to racism in maternal care in Sweden in the past 10 years.

The principal investigator for the project is Dalarna University. The principal investigator is the organization responsible for the project. The research is approved by the Ethical Review Authority, the case number for the review with the Ethical Review Authority is 2024-03228-01.

What will the study involve?

The study consists of a web survey with open-ended questions aimed at those who feel they have been subjected to racism or those who have witnessed their partner being subjected to racism in connection with maternal care in Sweden.

You answer the questions once via your computer or phone and choose how much time you spend answering the questions. The questions are about:

• The encounter with healthcare
• Experiences of you or your relative being discriminated against because of your/their ethnicity, race, or skin color
• Wishes regarding how future maternal care should look and what is required to achieve that

Possible consequences and disadvantages of taking part

The questions in the survey require you to reflect on experiences you have had, which some people may find stressful or uncomfortable. Participation is always voluntary, and you can choose to withdraw at any time. If you experience discomfort or otherwise need help with your mental well-being, you are welcome to contact the principal investigator, who can assist you in getting further support.

What will happen to the information that you give?

The only data we collect about you are your survey responses. We do not record your IP address. Your responses will be handled in such a way that unauthorized persons cannot access them. All responses will be treated anonymously and reported at a group level. When we present the results, the information cannot be traced back to you. At the end of the project, the data will be either deleted or archived according to Dalarna University’s regulations for research data.

Dalarna University is responsible for your personal data. According to the EU’s General Data Protection Regulation (GDPR), you have the right to access the data about you that is processed in the project free of charge, and to have any errors corrected if necessary. You can also request that your data be deleted and that the processing of your personal data be restricted. However, the right to deletion and restriction of processing does not apply when the data is necessary for the current research. If you wish to access the data, you should contact Fatumo Osman (see contact details below). The Data Protection Officer can be reached at dataskydd@du.se. If you are dissatisfied with how your personal data is handled, you have the right to file a complaint with the Swedish Authority for Privacy Protection, which is the supervisory authority.

How will you receive information about the project’s results?

The results will be published through articles in scientific journals. They will also be presented at academic conferences, in popular science magazines, and in public lectures. Your identity will never be revealed in any publication or presentation. You can decide if you would like to access the study’s results. If so, you can download the articles from the project’s website or contact the principal investigator.

Participation is voluntary

Your participation is voluntary, and you can choose to withdraw at any time. If you choose not to participate or wish to withdraw, you do not need to provide a reason, and it will not affect your future care or treatment. If you wish to withdraw your participation, you should contact the project leader (see below).

Project leader

Other collaborators